Fortunately, for patients with CML, the outcome is excellent. The tyrosine kinase inhibitors enable most individuals to become long-term survivors, but sometimes people ask, “Can I stop my medications?” There may be a small subgroup of patients who have been in remission for a long time in which carefully monitored stopping may be possible. Do not try this on yourself. If you are going to want to stop, talk to your doctor, see if you meet the criteria that have been defined in some of the clinical trials to be eligible for stopping, and then you need to be monitored extremely carefully to make sure that your disease does not come back. However, there is potential for a long-term survival off medications in some individuals.
MediCom Worldwide, Inc. acknowledges the collaborative support from The Leukemia & Lymphoma Society (LLS).
www.LLS.org/CML - CML webpage with links to resources
www.LLS.org/booklets - Chronic Myeloid Leukemia (booklet) and Chronic Myeloid Leukemia Guide(easier to read booklet)
www.LLS.org/PCR - Financial Assistance for PCR test
www.LLS.org/educationvideos - Two videos - CML: The Role of PCR Testing and Resistant Myeloid Leukemia
www.myPCR.org - Coalition of CML-focused organizations provides information about PCR, campaign to increase awareness of the need to monitor CML treatment, and resources for patients.